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News archive palliative care

NIVEL: Autonomy in end-of-life care for people with intellectual disabilities

Respect for autonomy can be interpreted as minimising interference by others. However, for people with intellectual disabilities who are in the final phase of life, other people are in fact very important when it comes to respecting the autonomy of the person concerned. It is the caregivers and family who give these people a voice. This is what has been reported by researchers from NIVEL and VUmc in the Journal of Intellectual Disability Research.

23-04-2013
NIVEL: Family carers need support during all stages of dementia

People who are caring for family members with dementia need professional support at all stages of the condition. This might for instance be advice on how to deal with the patient's behavioural problems, or information about how dementia progresses and the care options available. The longer the dementia goes on, the more the family carers feel the restrictions on their own social activities. This has been reported by researchers from the Netherlands Institute for Health Services Research (NIVEL) and Alzheimer Nederland in The Open Nursing Journal.

08-04-2013
Palliative care often deployed too late in chronic conditions

Palliative care encompasses more than terminal care alone, and can be started at an earlier stage. However, in patients with a disease other than cancer – for example those with COPD or the vulnerable elderly – the general practitioner (GP) often only becomes aware of the need for palliative care gradually and at a relatively short time before death. This has been shown by research carried out by physician Susanne Claessen at the Netherlands Institute for Health Services Research (NIVEL) and the EMGO Institute for Health and Care Research. Claessen will be awarded a doctorate for her thesis on this subject at the VU University Medical Center (VUmc), Amsterdam on February 28, 2013.
 

26-02-2013
Palliatieve zorg én streven naar genezing

At the end of their life, cure is less often an important treatment aim for patients with cancer than for patients with another disease. For only a small number of patients palliation as well as cure is a treatment aim, as a publication by researchers at NIVEL and VUmc shows in the British Journal of General Practice.

24-05-2012
Palliative care: telling everything is not always the best

In palliative care for Turkish and Moroccan patients, care providers have to balance between their own professional values and the values of patients and their family. Open and direct information as we are used to in the Netherlands, can destroy all hope and can be perceived as rather harsh, as a NIVEL study shows, on which subject Fuusje de Graaff obtained her doctorate on February the 23rd at Amsterdam University.
 

28-02-2012

The Netherlands was the first country in the world to implement a Euthanasia Act in 2002. Research comparing the requests for euthanasia in Dutch general practices before and after implementation of the Euthanasia Act did not show an increase. The Act provides a framework for developing professional guidelines enhancing compliance to the criteria allowing euthanasia. As reported by NIVEL researchers in the British Journal of General Practice.
 

26-04-2010
On the way to a new set of quality indicators for palliative care

Existent quality indicators for palliative care mainly focus on physical aspects. Few quality indicators exist, however, for the social and spiritual domains of palliative care. A systematic review on quality indicators of palliative care of EMGO+/VUmedical center and NIVEL has been published in The Journal of Pain and Symptom Management.

30-08-2009