Project
afgesloten

Pilot-study Care and living situation of cancer patients with a poor prognosis, in addition to the monitor Panel Living with Cancer.

Cancer has a huge impact on the lives of patients and their families. To monitor developments in the care and living situation of people diagnosed with cancer, NIVEL and IKNL started a nationwide panel-study of people with cancer in May 2011, called Panel Living with Cancer. Cancer patients with a poor prognosis are excluded from the panel-study. At the start of the panel-study it was stated that the needs and experiences of the latter group also deserve research attention, but that research within this group would need a specific approach.
To recruit participants for the pilot-study, a sample of 600 patients with a poor prognosis at diagnosis will be drawn from the Netherlands Cancer Registry. These people will be approached for the study by their physician/nurse. Patients and/or partners who want to participate fill in a questionnaire at home. Part of them will also be interviewed at home.
ICARE4EU will describe the state of the art in 30 European countries; evaluate current integrated care programmes for people with multimorbidity; identify best practices from different perspectives (patientcentredness, e-health technology, professional involvement and organization, financing system); generate knowledge about conditions for successful management and implementation of integrated care programmes; design a template for future monitoring of the developments in multimorbidity chronic illness care; and disseminate its findings throughout Europe.
The pilot-study will result in a project plan to monitor developments (at group level) in the care and living situation of cancer patients with a poor prognosis and their partners. Besides, the study will generate first insights into the care and living situation of this group, in addition to the group of people with cancer who are represented in the panel-study.
Funding
KWF Kankerbestrijding
In this project we work together with
Integraal Kankercentrum Nederland (IKNL)