Registry of cancer patients to monitor the impact of (pharmaco)therapy on health problems presented in
primary care

Duration: November 2016 - January 2020

Women surviving breast cancer treatment appear to have a certain risk to develop various side effects and diseases as a result of their treatment, either in the short, medium and long-term. However, at the same time, there is only a scant knowledge of the risk profiles of these women in relation to the type of adjuvant treatment, comorbidities or long-term use of medication. Detailed
knowledge of these issues is essential in adequately assisting future breast cancer patients in the decision making process regarding the treatment selection, and it is a prerequisite to improve the care for breast cancer survivors.
The new nationwide Primary and Secondary Care for Cancer patients Registry (PSCCR) data allows us to study a relevant and growing domain; health problems likely to be presented to the GP that are probably related to the use of certain adjuvant pharmaco cancer treatments; (radiation therapy will also be taken into account).
By combining data from secondary care from the Netherlands Cancer Registry (NCR) with primary care data from the NIVEL Primary Care Database (NIVEL-PCD) the present proposal concerns the development of a new and highly valuable registry with data of cancer patients.
PSCCR can be used to monitor the impact of different treatment modalities for different subgroups of patients. This provides the information to better weigh the pros and cons of different (expensive adjuvant pharmaco) treatment options in the decision making process of future patients. It will supply
feedback to primary and secondary care givers increasing their awareness of and thereby improving assessment of upcoming health problems.
In this project we work together with
IKNL (Sabine Siesling)