Project
afgesloten

Talking about end-of-life care with people with intellectual disabilities

Care professionals and relatives often encounter difficulties with communicating about illness and death with people with intellectual disabilities (ID). This project investigates what people with ID themselves find important for good end-of-life care.
What do people with ID find important for good end-of-life care?
Group interviews are held with approximately 30 adults with mild or moderate ID. The interviews are held in a secure environment on the basis of the nominal group technique (Irene Tuffrey-Wijne, 2007).
Supporting material for people with ID to (timely) communicate about end of life care and their wishes to care professionals and relatives.
Funding
Fonds Verstandelijk Gehandicapten