Junior onderzoeker (promovendus) Zorg vanuit Patiëntenperspectief
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Quality of Life in Oncology: measuring what matters for cancer patients and survivors in Europe: handbook & checklist.
Engelaar, M., Couespel, N., Lorenzo, N., Venegoni, E., Bos, N. Quality of Life in Oncology: measuring what matters for cancer patients and survivors in Europe: handbook & checklist. Utrecht / Brussels: Nivel / ECO, 2023. 19 p.
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The aim of the Handbook is to facilitate collaborations in participatory cancer research between researchers and persons that have been diagnosed with cancer and their relatives (called ‘co-researchers’). It is written for all researchers engaging in such research, and specifically for the researchers involved in the EUonQoL project.
Patient and public involvement (PPI) is a complex and dynamic process. Researchers inexperienced in PPI can use the Handbook as theoretical and practical guidance in shaping and executing PPI. More experienced researchers can employ it to refresh their memories and guarantee comprehensive consideration of all relevant aspects in their collaboration with co-researchers.
The Handbook contains a theoretical background on PPI and its benefits and barriers, followed by practical aspects that need to be considered when engaging in PPI. After that, the good practices of working with co-researchers are discussed. Finally, the Handbook contains a checklist with items that have to be completed when research activities start, such as agreement on roles, tasks and responsibilities, frequency of contact, reimbursement, and support possibilities.
Patient and public involvement (PPI) is a complex and dynamic process. Researchers inexperienced in PPI can use the Handbook as theoretical and practical guidance in shaping and executing PPI. More experienced researchers can employ it to refresh their memories and guarantee comprehensive consideration of all relevant aspects in their collaboration with co-researchers.
The Handbook contains a theoretical background on PPI and its benefits and barriers, followed by practical aspects that need to be considered when engaging in PPI. After that, the good practices of working with co-researchers are discussed. Finally, the Handbook contains a checklist with items that have to be completed when research activities start, such as agreement on roles, tasks and responsibilities, frequency of contact, reimbursement, and support possibilities.
The aim of the Handbook is to facilitate collaborations in participatory cancer research between researchers and persons that have been diagnosed with cancer and their relatives (called ‘co-researchers’). It is written for all researchers engaging in such research, and specifically for the researchers involved in the EUonQoL project.
Patient and public involvement (PPI) is a complex and dynamic process. Researchers inexperienced in PPI can use the Handbook as theoretical and practical guidance in shaping and executing PPI. More experienced researchers can employ it to refresh their memories and guarantee comprehensive consideration of all relevant aspects in their collaboration with co-researchers.
The Handbook contains a theoretical background on PPI and its benefits and barriers, followed by practical aspects that need to be considered when engaging in PPI. After that, the good practices of working with co-researchers are discussed. Finally, the Handbook contains a checklist with items that have to be completed when research activities start, such as agreement on roles, tasks and responsibilities, frequency of contact, reimbursement, and support possibilities.
Patient and public involvement (PPI) is a complex and dynamic process. Researchers inexperienced in PPI can use the Handbook as theoretical and practical guidance in shaping and executing PPI. More experienced researchers can employ it to refresh their memories and guarantee comprehensive consideration of all relevant aspects in their collaboration with co-researchers.
The Handbook contains a theoretical background on PPI and its benefits and barriers, followed by practical aspects that need to be considered when engaging in PPI. After that, the good practices of working with co-researchers are discussed. Finally, the Handbook contains a checklist with items that have to be completed when research activities start, such as agreement on roles, tasks and responsibilities, frequency of contact, reimbursement, and support possibilities.
