Search results

Oosterveld, M., Boeije, H.

Ervaringen en uitdagingen van mensen met een licht verstandelijke beperking tijdens het zoeken van medische hulp van hun huisarts: een interviewstudie.

Nederlands tijdschrift voor Artsen voor Verstandelijk Gehandicapten: 2021, 39(2), p. 89-93.

… huisarts’ (www.naarjehuisarts.nl). Background People with intellectual disabilities (ID) often have low health literacy as a result … Background People with intellectual disabilities (ID) often have low health literacy as a result …

Publication

Advance Care Planning in palliative care for people with intellectual disabilities.

Voss, H.

Utrecht: Nivel, 2021. 226 p. Proefschrift van de Vrije Universiteit, Amsterdam

… Advance Care Planning in palliative care for people with intellectual disabilities. Utrecht: Nivel, 2021. 226 p. Proefschrift van … Advance Care Planning in palliative care for people with intellectual disabilities. …

Publication

Voss, H., Francke, A.L., Veer, A.J.E. de

Implementation and sustainment of palliative care innovations within organizations for people with intellectual disabilities: a multi-method evaluation.

Disability and Health Journal: 2021, 14(2), p. 101049.

… Background Providing palliative care for people with intellectual disabilities (ID) is challenging and professionals caring for … Background Providing palliative care for people with intellectual disabilities (ID) is challenging and professionals caring for … care innovations within organizations for people with intellectual disabilities: a multi-method evaluation. …

Publication

Voss, H., Vogel, A.G.F.M., Wagemans, A.M.A., Francke, A.L., Metsemakers, J.F.M., Courtens, A.M., Veer, A.J.E. de

Development, implementation, and evaluation of an Advance Care Planning program for professionals in palliative care of people with intellectual disability.

Intellectual and Developmental Disabilities: 2021, 59(1), p. 39-54.

… Intellectual and Developmental Disabilities: 2021, 59(1), p. 39-54. … aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on ten … aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on ten …

Publication

Oosterveld-Vlug, M., Oldenkamp, M., Mastebroek, M., Boeije, H.

What difficulties do people with mild intellectual disabilities experience when seeking medical help from their GP? A qualitative study.

Journal of Applied Research in Intellectual Disabilities: 2020, 34(1), p. 178-189.

… Journal of Applied Research in Intellectual Disabilities: 2020, 34(1), p. 178-189. … Background People with intellectual disabilities often have low health literacy as a result of … Background People with intellectual disabilities often have low health literacy as a …

Publication

Scheffelaar, A., Bos, N., Jong, M. de, Triemstra, M., Dulmen, S. van, Luijkx, K.

Lessons learned from participatory research to enhance client participation in long-term care research: a multiple case study.

Research Involvement and Engagement: 2020, 6(27), p. 17 p..

… people, people with mental health problems or people with intellectual disabilities. Results A good working environment and a good … people, people with mental health problems or people with intellectual disabilities. Results A good working environment and a good …

Publication

Scheffelaar, A., Bos, N., Triemstra, M., Jong, M. de, Luijkx, K., Dulmen, S. van

Qualitative instruments involving clients as co-researchers to assess and improve the quality of care relationships in long-term care: an evaluation of instruments to enhance client participation in quality research.

BMJ Open: 2020, 10(2), p. 14 p..

… adults, people with mental health problems and people with intellectual disabilities. A total of 140 respondents participated in this … adults, people with mental health problems and people with intellectual disabilities. A total of 140 respondents participated in this …

Publication

2019

Watson, J., Voss, H., Bloomer, M.J.

Placing the preferences of people with profound intellectual and multiple disabilities at the center of end-of-life decision making through storytelling.

Research and Practice for Persons with Severe Disabilities: 2019, 44(4), p 267-279.

… Research and Practice for Persons with Severe Disabilities: 2019, 44(4), p 267-279. … on decision-making support for people with profound intellectual and multiple disability (PIMD) at the … on decision-making support for people with profound intellectual and multiple disability (PIMD) at the …

Publication

Voss, H., Vogel, A., Wagemans, A.M.A., Francke, A.L., Metsemakers, J.F.M., Courtens, A.M.C., Veer, A.J.E. de

What is important for advance care planning in the palliative phase of people with intellectual disabilities? A multi-perspective interview study.

Journal of Applied Research in Intellectual Disabilities: 2020, 33(2), p. 160-171.

… Journal of Applied Research in Intellectual Disabilities: 2020, 33(2), p. 160-171. … for future care. Research about ACP for people with intellectual disabilities (ID) is limited. This study describes what is … for future care. Research about ACP for people with intellectual disabilities (ID) is limited. This study …

Publication

2019

Voss, H., Vogel, A., Wagemans, A.M.A., Francke, A.L., Metsemakers, J.F.M., Courtens, A.M., Veer, A.J.E. de

Advance care planning in the palliative phase of people with intellectual disabilities: analysis of medical files and interviews.

Journal of Intellectual Disability Research: 2019, 63(10), p. 1262-1272.

… Journal of Intellectual Disability Research: 2019, 63(10), p. 1262-1272. … is to explore how ACP takes place in cases of people with intellectual disabilities (ID). Method Medical files were analysed, and … is to explore how ACP takes place in cases of people with intellectual disabilities (ID). Method Medical files were …

Publication

2019

Scheffelaar, A., Hendriks, M., Bos, N., Luijkx, K., Dulmen, S. van

Determinants of the quality of care relationships in long-term care: a participatory study.

BMC Health Services Research: 2019, 19(389)

… frail, people with mental health problems and people with intellectual disabilities. There is little clarity about how generic and … frail, people with mental health problems and people with intellectual disabilities. There is little clarity about how generic and …

Publication

Frankena, T.K., Naaldenberg, J., Bekkema, N., Schrojenstein Lantman-de Valk, H.J.M. van, Cardol, M., Leusink, G.

An exploration of the participation of people with intellectual disabilities in research: a structured interview survey.

Journal of Applied Research in Intellectual Disabilities: 2018, 31(5), p. 942-947.

… Journal of Applied Research in Intellectual Disabilities: 2018, 31(5), p. 942-947. … Background Even though participation of people with intellectual disabilities in research is increasingly common, there is … Background Even though participation of people with intellectual disabilities in research is increasingly common, …

Publication

Scheffelaar, A., Bos, N., Hendriks, M., Dulmen, S. van, Luijkx, K.

Determinants of the quality of care relationships in long-term care: a systematic review.

BMC Health Services Research: 2018, 18(903)

… with mental health problems and people with physical or intellectual disabilities. Included studies concern clients receiving … with mental health problems and people with physical or intellectual disabilities. Included studies concern clients receiving …

Publication

Scheffelaar, A., Hendriks, M., Bos, N., Luijkx, K.G., Dulmen, S. van

Protocol for a participatory study for developing qualitative instruments measuring the quality of long-term care relationships.

BMJ Open: 2018, 8(11), p. e022895.

… people with mental health problems and people with intellectual disabilities. Using a participatory research method, we will … people with mental health problems and people with intellectual disabilities. Using a participatory research method, we will …

Publication

Dörenberg, V.E.T., Veer, A.J.E. de, Francke, A.L., Embregts, P.J.C.M., Nieuwenhuizen, M. van, Frederiks, B.J.M.

Applying restrictive measures in the care of adolescents with mild intellectual disabilities: attitudes of support staff and policy implications.

Journal of Policy and Practice in Intellectual Disabilities: 2018, 15(1), p. 26-35.

… Journal of Policy and Practice in Intellectual Disabilities: 2018, 15(1), p. 26-35. … measures are widely used on adolescents with mild intellectual disabilities. In the Netherlands, restrictive measures are … measures are widely used on adolescents with mild intellectual disabilities. In the Netherlands, restrictive …

Publication

2017

Boer, D. de, Hofstede, J.M., Veer, A.J.E. de, Raijmakers, N.J.H., Francke, A.L.

Relatives’ perceived quality of palliative care: comparisons between care settings in which patients die.

BMC Palliative Care: 2017, 16(41)

… in another institution (e.g. institutions for people with intellectual disabilities or mental healthcare institutions). The … in another institution (e.g. institutions for people with intellectual disabilities or mental healthcare institutions). The …

Publication

Heutmekers, M., Naaldenberg, J., Frankena, T.K., Smits, M., Leusink, G.L., Assendelft, W.J.J., Schrojenstein Lantman-de Valk, H.M.J. van

After-hours primary care for people with intellectualdisabilities in The Netherlands—Current arrangements andchallenges.

Research in Developmental Disabilities: 2016, 59(1), p. 1-7.

… Research in Developmental Disabilities: 2016, 59(1), p. 1-7. … organisation of after-hours primary care for peoplewith intellectual disabilities (ID), and mainstream care is not self-evidently … organisation of after-hours primary care for peoplewith intellectual disabilities (ID), and mainstream care is not …

Publication

2017

Voss, H., Vogel, A., Wagemans, A.M.A., Francke, A.L., Metsemakers, J.F.M., Courtens, A.M., Veer, A.J.E. de

Advance care planning in palliative care for people with intellectual disabilities: a systematic review.

Journal of Pain and Symptom Management: 2017, 54(6), p. 938-960.

… use and effects of ACP in palliative care for people with intellectual disabilities (ID). Methods Four databases were searched … use and effects of ACP in palliative care for people with intellectual disabilities (ID). Methods Four databases were searched … Advance care planning in palliative care for people with intellectual disabilities: a systematic review. Journal of …

Publication

2017

Voss, H., Vogel, A., Wagemans, A.M.A., Francke, A.L., Metsemakers, J.F.M., Courtens, A.M., Veer, A.J.E. de

Advance care planning in palliative care for people with intellectual disabilities: a systematic review.

European Journal of Palliative Care: 2017, p. 224. Abstract. In: Abstractbook 15th World congress of the European associationn for Palliative care: Progressing Palliative Care. 18-20 mei 2017, Madrid.

… Advance care planning in palliative care for people with intellectual disabilities: a systematic review. European Journal of … Advance care planning in palliative care for people with intellectual disabilities: a systematic review. … intellectual disabilities …

Publication

The challenge of caring together: end-of-life care for people with intellectual disabilities.

Bekkema, N.

Utrecht: NIVEL, 2016. 222 p.

… is to further explore end-of-life care for people with intellectual disabilities (ID) from the perspectives of people with ID, … is to further explore end-of-life care for people with intellectual disabilities (ID) from the perspectives of people with ID, … of caring together: end-of-life care for people with intellectual disabilities. Utrecht: NIVEL, 2016. 222 p. …

Publication

Tuffrey-Wijne, I., Wicki, M., Heslop, P., McCarron, M., Todd, S., Oliver, D., Veer, A. de, Ahlstöm, G., Schäper, S., Hynes, G., O'Farrell, J., Adler, J., Riese, F., Curfs, L.

Developing research priorities for palliative care of people with intellectual disabilities in Europe: a consultation process using nominal group technique.

BMC Palliative Care: 2016, 15(36)

… around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the availability of … for research priorities for palliative care of people with intellectual disabilities in Europe. Methods A two-day … around palliative care provision and needs of people with intellectual disabilities is extremely limited, as is the …

Publication

2015

Bekkema, N., Tuffrey-Wijne, I., Wagemans, A., Hertogh, C., Francke, A., Veer, A. de

Decision-making about the best place of palliative care for people with intellectual disabilities: a guide for care staff and healthcare professionals providing palliative care for people with intellectual disabilities.

Utrecht: NIVEL, 2015. 20 p.

… professionals providing palliative care for people with intellectual disabilities. … professionals providing palliative care for people with intellectual disabilities. … about the best place of palliative care for people with intellectual disabilities: a guide for care staff and …

Publication

2015

Bekkema, N., Veer, A.J.E. de, Hertogh, C.M.P.M., Francke, A.L.

'From activating towards caring': shifts in care approaches at the end of life of people with intellectual disabilities; a qualitative study of the perspectives of relatives, care-staff and physicians.

BMC Palliative Care: 2015, 14(33)

… and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This … and relatives increasingly have to deal with people with intellectual disabilities (ID) who are in need of end-of-life care. This …

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