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Publication

2010
Cardol, M., Rijken, M.
Balancing between health and autonomy. 'Diabetes says: two sandwiches and one cream cracker only'.
Journal of Applied Research in Intellectual Disabilities: 2010, 23(5), p. 454. Abstract. 3rd International Conference of IASSID-Europe, 20-22 October 2010, Rome.
… Journal of Applied Research in Intellectual Disabilities: 2010, 23(5), p. 454. Abstract. 3rd … one cream cracker only'. Journal of Applied Research in Intellectual Disabilities : 2010, 23(5), p. 454. Abstract. 3rd …

Publication

2012
Veer, A.J.E. de, Bekkema, N., Hertogh, C.M.P.M., Francke, A.L.
Problems and training needs in end of life care for people with intellectual disabilities.
Palliative Medicine: 2012, 26(4), p. 529. Abstract. 7th World Research Congress of the European Association for Palliative Care (EAPC), 7-9 juni 2012, Trondheim.
… it was found that professionals caring for people with intellectual disabilities were experiencing deficits in their knowledge … state-of-the art of the end-of- life care for people with intellectual disabilities. Methods: A pre-structured … it was found that professionals caring for people with intellectual disabilities were experiencing deficits in their …

Publication

2012
Francke, A.L., Bekkema, N., Hertogh, C.M., Veer, A.J.E. de
Respecting the autonomy at the end-of-life of people with intellectual disabilities.
Palliative Medicine: 2012, 26(4), p. 645. Abstract. 7th World Research Congress of the European Association for Palliative Care (EAPC), 7-9 juni 2012, Trondheim.
… Background: In people with intellectual disabilities (ID), respect for autonomy has to match with the … Background: In people with intellectual disabilities (ID), respect for autonomy has to match with the … Respecting the autonomy at the end-of-life of people with intellectual disabilities. Palliative Medicine : 2012, 26(4), …
General

Nivel Panel Living Together - people with intellectual disabilities and family members

… on the care and living situation of people with an intellectual disability and relatives from their perspective, … of: approximately 500 people with a mild or moderate intellectual disability approximately 350 relatives of people … Methodology The panel members with intellectual disabilities are invited once every two years for an oral …
General

Our national Databases and Panels

… Together Panel - people with chronic illness or physical disabilities The Nivel Stronger Together Panel  is a … our society.   Nivel Panel Living Together - people with intellectual disabilities and family members With the Nivel … on the care and living situation of people with an intellectual disability and their relatives, from their …