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Ouder worden met een verstandelijke beperking, volgens mensen zelf en hun familie.

Cardol, M., Meulenkamp, T.M. Ouder worden met een verstandelijke beperking, volgens mensen zelf en hun familie. NTZ: Nederlands Tijdschrift voor de Zorg aan mensen met verstandelijke beperkingen: 2013, 39(3), p. 196-208.
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This paper reports about experiences with ageing of people with mild or moderate intellectual disabilities and their close family members in an explorative study. It is argued that senior care policy is relevant for people with mild disability. Although 80% of people with intellectual disability aged 60 years and over reported a good health, at the same time, 62% of those aged 40 and over were experiencing age-related changes. They reported declining physical and cognitive functioning, changes in activity patterns and in their perception of events. Especially fatigue is mentioned frequently. About 57% of the family members reported their relative with intellectual disability aged 60 years and over, to be in good health. For people younger than 60 years of age, 82% of the family members did so. Almost half of the relatives (48%) reported experiences with and worries about ageing with respect to their relatives with intellectual disability. They mentioned changes in physical appearance and in health, future living situations, daily activities, social contacts, care and finances, and dying. As yet, care services focus their senior policy on professional competences, housing conditions and activity patterns of the elderly. We argue that they should adopt a life course perspective that includes a wide range of life domains, beginning at younger age and also including persons with mild or moderate disabilities. (aut.ref.)
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