The National Panel of the Chronically ill and Disabled (NPCD) is a nationwide Dutch panel, established to gather information on the consequences of chronic disease and disability from a patient perspective.
National Panel of the Chronically ill and Disabled (NPCD)
One of Nivel's national panels
Nivel's National Panel of the Chronically ill and Disabled (NPCD) is part of Nivel's research infrastructure, which consists of panels, national databases and monitors. With this research infrastructure, Nivel provides relevant information from different perspectives: that of patients, clients and citizens, that of healthcare providers and that of the organisation of healthcare.
By gathering information on the consequences of chronic disease and disability from a patient perspective, we aim to help policy makers in improving the care for chronically ill and disabled members of the society.
Panel members (> 4,000)
The NPCD consisted of more than 4,000 people with chronic illness or physical disability.
For the NPCD, participants are recruited from random samples of general practices that are drawn from the Dutch Database of General Practices. They are selected according to the following criteria:
- diagnosis of a somatic chronic disease by a certified medical practitioner
- aged 15 years or more
- not permanently institutionalized, aware of the diagnosis, not terminally ill (their life expectancy is more than six month according to their general practitioner)
- mentally capable of participating
- sufficient mastery of the Dutch language
Members of NPCD are also recruited on the basis of a self-reported moderate or severe physical disability from several national population surveys conducted by the Statistics Netherlands (CBS).
Panel members fill in questionnaires at home twice a year.
We value the privacy of people and organizations that participate in our registrations. In our Privacy Regulations for the National Panel of the Chronically ill and Disabled (NPCD) (in Dutch) we state what data we collect, how we manage it, what data we may provide to third parties and what the rights of the registered participants are. Hereby we adhere to the General Data Protection Regulation (GDPR), that took effect in EU in 2018:
- Researchers have no access to identifiable data of participants (e.g. name, address, citizen service number).
- Research results cannot be traced back to individual persons, healthcare providers or organisations.
- Participating healthcare providers may withdraw from Nivel's registrations at any time, without stating reasons.
The NPDC is part of the ongoing research project ‘Monitoring the care and living situation of people with a chronic disease or disabilty’. This monitor is financed by the Dutch Ministry of Health, Welfare and Sport.
What can we do for you?
Other organisations can use our data or use the NPCD for own research. Please feel free to contact us for the options. Send an e-mail to our program coördinator Hennie Boeije: firstname.lastname@example.org.
For more information about Nivel as a partner in healthcare services research in general, please feel free to contact our manager International Projects Inge van Houdt PhD.