National Panel of the Chronically ill and Disabled (NPCD)

The National Panel of the Chronically ill and Disabled is a nationwide panel study in The Netherlands, established to gather information on the consequences of chronic disease and disability from a patient perspective.

Aim

By gathering information on the consequences of chronic disease and disability from a patient perspective, we aim to help policy makers in improving the care for chronically ill and disabled members of the society.

Panel members

In 2017, the NPCD consisted of more than 4,000 people with chronic illness or physical disability.

For the NPCD, participants are recruited from random samples of general practices that are drawn from the Dutch Database of General Practices. They are selected according to the following criteria:

  • diagnosis of a somatic chronic disease by a certified medical practitioner
  • aged 15 years or more
  • not permanently institutionalized, aware of the diagnosis, not terminally ill (their life expectancy is more than six month according to their general practitioner)
  • mentally capable of participating
  • sufficient mastery of Dutch.
  • Members of NPCD are also recruited on the basis of a self-reported moderate or severe physical disability from several national population surveys conducted by the Statistics Netherlands (CBS).

Methodology

Panel members fill in questionnaires at home twice a year.

Funding

The NPDC is part of the ongoing research programme Monitoring the care and living situation of people with a chronic disease or disabilty. The Monitor is financed by the Dutch Ministry of Health, Welfare and Sport.

More information

Other organisations can use our data or use the NPCD for own research. Please feel free to contact us for the options.
Contact: h.boeije@nivel.nl

<p>Boeije, H</p> . National Panel of the Chronically ill and Disabled (NPCD). From: www.nivel.nl [Last update 19-February-2021; consulted on 08-March-2021]. URL: https://www.nivel.nl/en/national-panel-chronically-ill-and-disabled-npcd