Panel Living Together - people with intellectual disabilities and family members

With the Panel Living Together we gain information on the care and living situation of people with a intellectual disability and their relatives, from their perspective.

Panel Samen LevenOne of Nivel's national panels

Nivel's Panel Panel Living Together is part of Nivel's research infrastructure, which consists of panels, national databases and monitors. With this research infrastructure, Nivel provides relevant information from different perspectives: that of patients, clients and citizens, that of healthcare providers and that of the organisation of healthcare.

Doel Aim

By gathering information on the care and living situation of people with an intellectual disability and relatives from their perspective, we aim to support policy makers in improving the care and possibilities for these members of our society.

DeelnemersPanel members

The Panel Living Together consists of:

  • approximately 500 people with a mild or moderate intellectual disability
  • approximately 350 relatives of people with an intellectual disability (mostly relatives sometimes good friends or professionals)

Type patientMethodology

The panel members with intellectual disabilities are invited once every two years for an oral interview at their homes. The questions mainly concern participation issues: whether and how they participate in society and how they wish to participate.
Relatives receive a questionnaire once a year with questions about participation of the panel member with an intellectual disability in society.

Privacy protection

We value the privacy of people and organizations that participate in our registrations. In our Privacy Regulations for the National Panel Living Together (in Dutch) we state what data we collect, how we manage it, what data we may provide to third parties and what the rights of the registered participants are. Hereby we adhere to the General Data Protection Regulation (GDPR), that took effect in EU in 2018:

  • Researchers have no access to identifiable data of participants (e.g. name, address, citizen service number).
  • Research results cannot be traced back to individual persons, healthcare providers or organisations.
  • Participating healthcare providers may withdraw from Nivel's registrations at any time, without stating reasons.

ResultatenResults

Results of research with the panel you can find at Publications on this website, where you can fill in your own search entrance (such as 'intellectual disabilities').

SterFunding

The Panel Living Together is financed by the Dutch Ministry of Health, Welfare and Sport.

Meer wetenWhat can we do for you?

For more information about research with the Nivel Panel Living Together, please send an e-mail to samenleven@nivel.nl or contact one of the Nivel contacs on the right.
For more information on conducting research together with Nivel in general, go to Nivel, partner in international research.
We look forward to getting in touch with you.

 

Boeije, H., Voss, H. Panel Living Together - people with intellectual disabilities and family members. From: www.nivel.nl [Last update 05-July-2021; consulted on 18-September-2021]. URL: https://www.nivel.nl/en/panel-samen-leven/panel-living-together-people-intellectual-disabilities-and-family-members
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