Coordinator research program Nursing Care and Elderly Care; endowed professor 'Nursing and care at the end of life', VU University Medical Center Amsterdam, The Netherlands
Publicatie
Publication date
Time from diagnosis to institutionalization and death in people with dementia.
Joling, K.J., Janssen, O., Francke, A.L., Verweij, R.A., Lissenberg-Witte, B.I., Visser, P.J., Hout, H.P.J. van. Time from diagnosis to institutionalization and death in people with dementia. Alzheimer's & Dementia: 2020, 10 p.
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Introduction
Reliable estimates of time from diagnosis until institutionalization and death in people with dementia from routine nationally representative databases are lacking.
Methods
We selected 9230 people with dementia and 24,624 matched controls from family physicians’ electronic records linked with national administrative databases to analyze time until institutionalization and death and associated factors.
Results
Median time from recorded diagnosis until institutionalization and until death for people with dementia was 3.9 and 5.0 years, respectively, which was considerably shorter than for controls. Once institutionalized, median time to death was longer for persons with dementia (2.5 years) than for controls (1.2 years). Older age and receiving home care were the strongest predictors of shorter time until institutionalization and death in people with dementia. Gender, cohabitation, migration status, frailty, polypharmacy, and dementia medication were other significant factors.
Discussion
The estimates could help to inform patients, their families, and policymakers about probable trajectories.
Reliable estimates of time from diagnosis until institutionalization and death in people with dementia from routine nationally representative databases are lacking.
Methods
We selected 9230 people with dementia and 24,624 matched controls from family physicians’ electronic records linked with national administrative databases to analyze time until institutionalization and death and associated factors.
Results
Median time from recorded diagnosis until institutionalization and until death for people with dementia was 3.9 and 5.0 years, respectively, which was considerably shorter than for controls. Once institutionalized, median time to death was longer for persons with dementia (2.5 years) than for controls (1.2 years). Older age and receiving home care were the strongest predictors of shorter time until institutionalization and death in people with dementia. Gender, cohabitation, migration status, frailty, polypharmacy, and dementia medication were other significant factors.
Discussion
The estimates could help to inform patients, their families, and policymakers about probable trajectories.