Programmaleider Verpleging, Verzorging en Ouderenzorg; bijzonder hoogleraar 'Verpleging en verzorging in de laatste levensfase', Vrije Universiteit / Amsterdam UMC
Publicatie
Publicatie datum
What facilitates or hampers living at home with advanced dementia until the end of life? A qualitative study using retrospective interviews among family caregivers, general practitioners, and case managers.
Jong, L.M. de, Francke, A.L., Donker, G., Buuse, S. van den, Heide, I. van der. What facilitates or hampers living at home with advanced dementia until the end of life? A qualitative study using retrospective interviews among family caregivers, general practitioners, and case managers. Journal of Applied Gerontology: 2023, 42(7), p. 1404-1413.
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Objective
This study provides insight into circumstances that facilitate or hamper living at home with advanced dementia until the end of life.
Methods
Interviews were held with 11 bereaved family caregivers, two general practitioners, and nine case managers, related to a total of 12 persons with advanced dementia who had recently died.
Results
Persons with dementia who lived at home until the end of life often had family caregivers that received timely support from professionals and their social network. In the cases where the person with dementia could not live at home until the end of life, safety issues, severely challenging behavior, and high care dependency of the person with dementia played key roles.
Conclusion
Case management and a continuous process of advance care planning will improve the chance that the end-of-life setting is in accordance with the key values and needs of both the person with dementia and family caregivers.
This study provides insight into circumstances that facilitate or hamper living at home with advanced dementia until the end of life.
Methods
Interviews were held with 11 bereaved family caregivers, two general practitioners, and nine case managers, related to a total of 12 persons with advanced dementia who had recently died.
Results
Persons with dementia who lived at home until the end of life often had family caregivers that received timely support from professionals and their social network. In the cases where the person with dementia could not live at home until the end of life, safety issues, severely challenging behavior, and high care dependency of the person with dementia played key roles.
Conclusion
Case management and a continuous process of advance care planning will improve the chance that the end-of-life setting is in accordance with the key values and needs of both the person with dementia and family caregivers.
Objective
This study provides insight into circumstances that facilitate or hamper living at home with advanced dementia until the end of life.
Methods
Interviews were held with 11 bereaved family caregivers, two general practitioners, and nine case managers, related to a total of 12 persons with advanced dementia who had recently died.
Results
Persons with dementia who lived at home until the end of life often had family caregivers that received timely support from professionals and their social network. In the cases where the person with dementia could not live at home until the end of life, safety issues, severely challenging behavior, and high care dependency of the person with dementia played key roles.
Conclusion
Case management and a continuous process of advance care planning will improve the chance that the end-of-life setting is in accordance with the key values and needs of both the person with dementia and family caregivers.
This study provides insight into circumstances that facilitate or hamper living at home with advanced dementia until the end of life.
Methods
Interviews were held with 11 bereaved family caregivers, two general practitioners, and nine case managers, related to a total of 12 persons with advanced dementia who had recently died.
Results
Persons with dementia who lived at home until the end of life often had family caregivers that received timely support from professionals and their social network. In the cases where the person with dementia could not live at home until the end of life, safety issues, severely challenging behavior, and high care dependency of the person with dementia played key roles.
Conclusion
Case management and a continuous process of advance care planning will improve the chance that the end-of-life setting is in accordance with the key values and needs of both the person with dementia and family caregivers.
